Even from day one of the cancer journey – diagnosis – the burden of information is mind-boggling. Leaflets from your doctor, media headlines popping up on your phone, instagram influencers, and of course the mandatory remainder of the day post-diagnosis spent on google scouring every site available to understand your condition.
On the first day of your cancer journey you may already feel so inundated with conflicting cancer information that you already begin to lose hope.
You wouldn’t be alone. Up to 70% of those who have experienced cancer were dissatisfied with the information they received during their experience. (1,2) In one study by CancerCare, (3) many respondents reported not having enough information about important aspects of their cancer and treatment:
As someone with cancer looking for information, there’s a number of hurdles you might face which lead to this dissatisfaction with information.
Too many people are experiencing these challenges and not getting the cancer information they need. But this has to change. This is why we founded the CURIA app, seeking to help you overcome these hurdles, by giving you access to up-to-date and accurate information pooled from only reliable online sources. The information is also tailored to your disease profile thanks to a questionnaire, and translated to remove medical jargon.
Persevering in your search for information is vital. As someone living with cancer, the more you understand the disease and your options, the more able you are to push for a better standard of care and work with your doctors to find the best solution for you.
Living with cancer requires you to fight for all you are worth. And doesn’t that include making sure you understand your disease, know your options, and engage with your doctor to explore each option on the table?
REFERENCES
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